The Pain Exchange

General Privacy Notice


Your personal data – what is it?

 “Personal data” is any information about a living individual which allows them to be identified from that data (for example a name, photographs, videos, email address, or address).  Identification can be by the information alone or in conjunction with any other information.  The processing of personal data is governed by [the Data Protection Bill/Act 2017 the General Data Protection Regulation 2016/679 (the “GDPR” and other legislation relating to personal data and rights such as the Human Rights Act 1998].

Who are we?

This Privacy Notice is provided to you by the Pain Exchange Charity which is the data controller for your data.

The Pain Exchange is a charitable incorporated organisation with the objective of providing a physiotherapy based programme to those who suffer from chronic pain.

What data does the Pain Exchange data controller process?  They will process some or all of the following where necessary to perform their tasks:

·          Names, titles, and aliases, photographs;

·           Contact details such as telephone numbers, addresses, and email addresses;

·            Where they are relevant to our charity objectives, service evaluation and research, or where you provide them to us, we may process demographic information such as gender, age, date of birth, marital status, nationality, education/work histories, academic/professional qualifications, hobbies, family composition, and dependants;

·           Where you make donations, financial identifiers such as bank account numbers, payment card numbers, payment/transaction identifiers, policy numbers, and claim numbers;

·           The data we process is likely to constitute sensitive personal data because, the fact that we process your data at all may be suggestive of your medical health.  Where you provide this information, we may also process other categories of sensitive personal data: racial or ethnic origin, mental and physical health, details of injuries and medication/treatment received.

How do we process your personal data?

The data controllers will comply with their legal obligations to keep personal data up to date; to store and destroy it securely; to not collect or retain excessive amounts of data; to keep personal data secure, and to protect personal data from loss, misuse, unauthorised access and disclosure and to ensure that appropriate technical measures are in place to protect personal data.

If you are a patient, we use your personal data for some or all of the following purposes:

·            To enable us to meet all legal and statutory obligations (regarding storage of medical              data, provision of physiotherapy in accordance with HCPC, CSP and ICO regulations);

·            To carry out comprehensive safeguarding procedures (including due diligence and                  complaints handling) in accordance with best safeguarding practice from time to time          with the aim of ensuring that all adults-at-risk are provided with safe environments;

·            To maintain our own accounts and records;

·            To process a donation that you have made (including Gift Aid information);

·            To seek your views or comments;

·            To notify you of changes to our services, events and role holders;

·            To send you communications which you have requested and that may be of interest to         you. These may include information about campaigns, appeals, other fundraising activities;

·            To process a grant or application for a role;

·             To enable us to provide a voluntary service for the benefit of the public in a particular            geographical area as specified in our constitution;

If you are a supporter, we use your personal data for some or all of the following purposes:

·            To fundraise and promote the interests of the Pain Exchange charity;

·            To process a donation that you have made (including Gift Aid information);

·            To notify you of changes to our services, events and role holders;

·            To send you communications which you have requested and that may be of interest to         you. These may include information about campaigns, appeals, other fundraising activities.

What is the legal basis for processing your personal data?

Most of our data is processed because it is necessary for our legitimate interests, or the legitimate interests of a third party (such as another health professional).  An example of this would be communications with a GP.  We will always take into account your interests, rights and freedoms.

Some of our processing is necessary for compliance with a legal obligation.  For example, storage of medical information of adults for seven years.

Where your information is used other than in accordance with one of these legal bases, we will first obtain your consent to that use.

Sharing your personal data

Your personal data will be treated as strictly confidential.  It will only be shared with third parties where it is necessary for the performance of our tasks or where you first give us your prior consent.  It is likely that we will need to share your data with some or all of the following (but only where necessary):

·         Other health professionals such as GP’s, Consultant physio’s, social services or mental                     health services.

How long do we keep your personal data?

We will keep some records permanently if we are legally required to do so.  We may keep some other records for an extended period of time. For example, it is current best practice to keep financial records for a minimum period of 8 years to support HMRC audits unless you have a chronic or recurring condition, in which case we are legally bound to keep the notes for 30 years. In general, we will endeavour to keep data only for as long as we need it.  This means that we may delete it when it is no longer needed.

Your rights and your personal data 

 You have the following rights with respect to your personal data:

When exercising any of the rights listed below, in order to process your request, we may need to verify your identity for your security.  In such cases we will need you to respond with proof of your identity before you can exercise these rights.

1.          The right to access information we hold on you

·       At any point you can contact us to request the information we hold on you as well as why we have that information, who has access to the information and where we obtained the information from.  Once we have received your request we will respond within one month.

·        There are no fees or charges for the first request but additional requests for the same data may be subject to an administrative fee.

2.          The right to correct and update the information we hold on you

·       If the data we hold on you is out of date, incomplete or incorrect, you can inform us   and your data will be updated.

3.          The right to have your information erased

·      If you feel that we should no longer be using your data or that we are illegally using your data, you can request that we erase the data we hold.

·     When we receive your request we will confirm whether the data has been deleted or the reason why it cannot be deleted (for example because we need it for our legitimate interests or regulatory purpose(s)).

4.          The right to object to processing of your data

·     You have the right to request that we stop processing your data. Upon receiving the request we will contact you and let you know if we are able to comply or if we have legitimate grounds to continue to process your data.  Even after you exercise your right to object, we may continue to hold your data to comply with your other rights or to bring or defend legal claims.

5.          The right to data portability

·        You have the right to request that we transfer some of your data to another controller. We will comply with your request, where it is feasible to do so, within one month of receiving your request.

6.          The right to withdraw your consent to the processing at any time for any processing of          data to which consent was sought.

·      You can withdraw your consent easily by telephone, email, or by post (see Contact      Details below).

7.          The right to object to the processing of personal data where applicable.

8.          The right to lodge a complaint with the Information Commissioner’s Office.

Transfer of Data Abroad

Any electronic personal data transferred to countries or territories outside the EU will only be placed on systems complying with measures giving equivalent protection of personal rights either through international agreements or contracts approved by the European Union.  Our website is also accessible from overseas so on occasion some personal data (for example in a newsletter) may be accessed from overseas.

Further processing

If we wish to use your personal data for a new purpose, not covered by this Notice, then we will provide you with a new notice explaining this new use prior to commencing the processing and setting out the relevant purposes and processing conditions.  Where and whenever necessary, we will seek your prior consent to the new processing.

Contact Details

Please contact us if you have any questions about this Privacy Notice or the information we hold about you or to exercise all relevant rights, queries or complaints at:

The Data Controller, Retha Welding 

Email:     admin@painexchangeteam.org


 

 

You can contact the Information Commissioners Office on 0303 123 1113 or via email https://ico.org.uk/global/contact-us/email/ or at the Information Commissioner's Office, Wycliffe House, Water Lane, Wilmslow, Cheshire SK9 5AF.